As I listened to the World Afro Day online event, I wondered how these experiences might also impact on people of African and Caribbean descent who are living with Alopecia. Studies highlight that substantial numbers of Black women experience alopecia (Dadzie & Salem, 2015). I am one of them.
It is increasingly recognised that hair loss can cause significant distress such as shame, depression, grief and social anxiety (Hunt & McHale, 2007). But when the experience of having hair includes playground taunts, perhaps even school exclusion, hurtful remarks sometimes from own family relatives, work colleagues’ offensive ‘banter’, repeated scalp burns from long term hair straightening (relaxer) in the quest to be accepted as ‘professional’ – the reality for many Black clients/patients – what else needs attention in the consultation room?
Last year I was awarded a Churchill Fellowship to travel to the USA and South Africa to find out how psychological and medical practitioners there provide culturally-attuned care to Black women living with alopecia. I met with a hair psychologist, dermatologists, haircare professionals, community group organisers and public health academic researchers.
Some recommended best practices from my Fellowship learning include:
- Show compassionate awareness by acknowledging likely hair discrimination and trauma as part of Black clients’ lived experience,
- Respectfully ask for permission before examining a client’s hair and scalp (even if this is obviously what they are there for),
- Enquire about but ensure not to minimise the distress often stirred up by hair loss (for example, avoid saying, “it’s only hair”).
My Churchill Fellowship report, with full recommendations for improving the emotional wellbeing of Black patients with alopecia along their healthcare journey, will be available later this year.